{"id":2559,"date":"2017-01-31T18:46:12","date_gmt":"2017-01-31T17:46:12","guid":{"rendered":"https:\/\/centroandaluzalfa1.org\/?p=2559"},"modified":"2020-04-03T09:13:30","modified_gmt":"2020-04-03T07:13:30","slug":"recommendations-for-the-search-for-solutions-in-the-field-of-rare-diseases","status":"publish","type":"post","link":"https:\/\/centroandaluzalfa1.org\/en\/recommendations-for-the-search-for-solutions-in-the-field-of-rare-diseases\/","title":{"rendered":"Recommendations for the search for solutions in the field of Rare Diseases"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-post\" data-elementor-id=\"2559\" class=\"elementor elementor-2559\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-2394916 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"2394916\" data-element_type=\"section\" data-e-type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-dc228b7\" data-id=\"dc228b7\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-9a149c2 elementor-widget elementor-widget-image\" data-id=\"9a149c2\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"1015\" height=\"724\" src=\"https:\/\/centroandaluzalfa1.org\/wp-content\/uploads\/2017\/01\/Documento-recomendaciones-busqueda-EERR.jpg\" class=\"attachment-large size-large wp-image-2555\" alt=\"\" srcset=\"https:\/\/centroandaluzalfa1.org\/wp-content\/uploads\/2017\/01\/Documento-recomendaciones-busqueda-EERR.jpg 1015w, https:\/\/centroandaluzalfa1.org\/wp-content\/uploads\/2017\/01\/Documento-recomendaciones-busqueda-EERR-300x214.jpg 300w, https:\/\/centroandaluzalfa1.org\/wp-content\/uploads\/2017\/01\/Documento-recomendaciones-busqueda-EERR-768x548.jpg 768w\" sizes=\"(max-width: 1015px) 100vw, 1015px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-5fad7fb elementor-align-center elementor-widget elementor-widget-button\" data-id=\"5fad7fb\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-button-wrapper\">\n\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm\" href=\"https:\/\/enfermedades-raras.org\/index.php\/intranet-feder\/documentos\/file\/142-recomendaciones-para-la-b%C3%BAsqueda-de-soluciones-en-el-%C3%A1mbito-de-las-enfermedades-raras\" target=\"_blank\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">Download document<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-4385677\" data-id=\"4385677\" data-element_type=\"column\" data-e-type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-5eabe70 elementor-widget elementor-widget-text-editor\" data-id=\"5eabe70\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t<p>In January 2017, more than 30 organizations presented this document of proposals with the aim of establishing active and permanent platforms that jointly enable effective solutions to be found between the competent public authorities, political representatives and all the groups belonging to the field. of rare, minority or infrequent diseases and, thus, be able to defend, promote and improve the quality of life of the 3 million people affected by these diseases in Spain.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Download document In January 2017, more than 30 organizations presented this document of proposals with the aim of establishing active and permanent platforms that jointly enable effective solutions to be found between the competent public authorities, political representatives and all the groups belonging to the field. of rare, minority or infrequent diseases and, thus, be [&hellip;]<\/p>\n","protected":false},"author":5,"featured_media":2889,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center 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