{"id":8584,"date":"2023-03-28T19:32:08","date_gmt":"2023-03-28T17:32:08","guid":{"rendered":"https:\/\/centroandaluzalfa1.org\/?p=8584"},"modified":"2023-04-20T14:04:36","modified_gmt":"2023-04-20T12:04:36","slug":"minority-respiratory-diseases","status":"publish","type":"post","link":"https:\/\/centroandaluzalfa1.org\/en\/minority-respiratory-diseases\/","title":{"rendered":"Minority Respiratory Diseases"},"content":{"rendered":"\n

Minority Respiratory Diseases<\/h2>\n\n\n\n

1st Andalusian Conference on Minority Respiratory Diseases<\/strong><\/h3>\n\n\n\n

It will take place on March 3 and 4, 2023 in the Multipurpose Room of the San Cecilio Clinical University Hospital (free attendance until full capacity).<\/p>\n\n\n\n

Organized by: The Pulmonology Service of the San Cecilio Clinical University Hospital and the Pulmonology Service of the Virgen del Roc\u00edo University Hospital.<\/strong><\/p>\n\n\n\n

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On the occasion of the World Day for Rare Diseases<\/strong>, last Tuesday, February 28, emblematic buildings and monuments scattered throughout various cities in Spain were illuminated to give visibility to people who live with minority pathologies.<\/p>\n\n\n\n

Minority respiratory diseases represent approximately 3% of all rare diseases (www.orpha.net<\/a>) and, as in other rare diseases, delays in diagnosis and uncertainty about it are very common due to difficulties in professionals to accumulate experience on rare diseases or access leading specialists in these diseases.<\/p>\n\n\n\n

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For the whole of the European Union, a rare disease will be one that does not affect more than 227,000 people.<\/p>\n\n\n\n

If it is estimated that there are between 7,000-8,000 diseases that affect 6-7% of the general population, in the European Union between 27-30 million people could be affected<\/strong>, in Spain between 2.5-3 million people and in Andalusia, approximately 500,000 people.<\/p>\n\n\n\n

OBJETIVES<\/h3>\n\n\n\n

From Andalusia, the Pulmonology Services of the HU Cl\u00ednico San Cecilio in Granada and the HU Virgen del Roc\u00edo in Seville, have come together to carry out this 1st Andalusian Conference on Minority Respiratory Diseases.<\/p>\n\n\n\n

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The 1st Andalusian Day of Minority Respiratory Diseases is celebrated<\/h3>\n\n\n\n

In accordance with the World Day for Rare Diseases, an event has been organized that will take place on March 3 and 4 in the Assembly Hall of the HU Cl\u00ednico San Cecilio in Granada.<\/strong><\/p>\n<\/div>\n<\/div>\n\n\n\n

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Meeting attendees<\/h3>\n\n\n\n

This Conference is aimed at pulmonology, digestive, pediatrics and nursing professionals interested in rare respiratory diseases<\/strong> (alpha-1 antitrypsin deficiency and cystic fibrosis), has the endorsement of the Spanish Society of Pneumology and Thoracic Surgery (SEPAR), the Association of Pulmonology and Thoracic Surgery of the South (NEUMOSUR), as well with the endorsement and with the participation of the Alfa-1 Spain Association and the Andalusian Association of Cystic Fibrosis.<\/p>\n\n\n\n

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The proposed initiatives are the following:<\/strong><\/h4>\n\n\n\n