CENTRO ANDALUZ DE DÉFICIT ALFA 1
The Andalusian Center for Alpha 1 Deficiency studies this disease, which is caused by abnormally low concentrations of alpha 1 antitrypsin in plasma..
Granada Alpha 1 Center of Excellence
Our commitment is to promote research and training in Alpha-1 Antitrypsin Deficiency
¿What is AATD?
It is a rare disease characterized by abnormally low levels of Alpha-1 Antitrypsin (AAT) in plasma.
This is one of the best known and most frequent genetic causes.
On the other hand, it could lead to chronic obstructive pulmonary disease (COPD), emphysema or liver disease.
IN SEARCH OF A CURE
- Despite this known relationship, COPD secondary to AATD continues to be a challenge as it is a disease with a high underdiagnosis.
- Another goal is to spread the knowledge of this disease from a basic point of view (etiopathogenesis and epidemiology), as well as its treatment.
- Its condition as a minority respiratory disease makes it necessary to concentrate the cases detected in Centers of Excellence in DAAT, with the aim of generating knowledge about the disease and developing lines of research.
It is estimated that in Spain there may be around 14,500 individuals with severe homozygous Pi * ZZ deficit.
Who is our team
THE ANDALUSIAN CENTER ALFA 1
There is a large network of professionals dedicated to investigating Alpha 1 Anthrypsin Deficiency. The Alpha 1 Centers of Excellence are strategically located to be able to serve all patients in Spain.
Centre Alfa 1
They work in the Hospital Universitari Vall d'Hebron Cataluña. This center was a pioneer in treatment research.
In addition, it has developed a case detection and treatment program with intravenous AAT.
Managed by Phd. Marc Miravitlles since 2013.
Andalusian Center Alfa 1
It is located in the San Cecilio Clinical University Hospital of Granada, it was founded in 2016, and is led by Francisco Casas, Doctor accredited by the Spanish Society of Pulmonology and Thoracic Surgery (SEPAR). Recognized for his important work with the Alpha 1 Patient Association.
Centro Gallego Alfa 1
The Galicia team is located in the Álvaro Cunqueiro Hospital and is located in the city of Vigo. It is formed by a leading group since 2017, coordinated by Dr. María Torres.
Centro de Excelencia Alfa 1
Professionals specialized in DAAT in the province of Seville are at the Virgen del Rocío University Hospital. It was founded in 2018 and is coordinated by Dr. José Luis López-Campos.
Our mission
IMPROVE THE QUALITY LIFE OF OUR PATIENTS
We collaborate with a common goal “To advance research”.
Together we will achieve better results
There are numerous scientific societies, institutions and patient associations related to research and treatment at the national and international level.
Consult all the information of interest about the DAAT.
Patient Assistance
We offer personalized health care to patients and offer information to their families.
Research
We study the evolution of the disease and its impact on the quality of life of patients and their families.
Training and Teaching
We support training centers to publicize the DAAT among health professionals and medical students.
Patient Associations
We develop activities for the dissemination of the disease, aimed at patients and their families.
NEWS
One of our strategic objectives is to create lines of research on the disease to improve patient care. Here are the news, publications and articles related to the most recent advances in DAAT.
- AATD UPDATED
- INNOVATION
- EVENTS
- MEDIA
Contact
Hospital Clínico San Cecilio
Consultation Pavilion (consultation 4C01)
Telephone
958 840 547
info@centroandaluzalfa1.org
