Recommendations for the search for solutions in the field of Rare Diseases

In January 2017, more than 30 organizations presented this document of proposals with the aim of establishing active and permanent platforms that jointly enable effective solutions to be found between the competent public authorities, political representatives and all the groups belonging to the field. of rare, minority or infrequent diseases and, thus, be able to defend, promote and improve the quality of life of the 3 million people affected by these diseases in Spain.

Centro Andaluz Alfa-1