The San Cecilio University Hospital has hosted the workshop “Learning to live with the AATD”, developed by Doctor Francisco Casas Maldonado, also coordinator of the Aldaluz Alfa-1 Center.
Professionals from the Pulmonology Service of this hospital, located in the Health Technology Park, have participated, together with professionals from psychology and physiotherapy, in this workshop, which addresses issues such as the impact of respiratory disease on the patient’s life or the management of their main concerns. In addition, practical exercises for respiratory control and information to easily understand the disease are offered.
Eight patients accompanied by their relatives have participated in this activity to receive practical resources regarding the improvement of their emotional well-being and their quality of life.
Patients and professionals from Granada and Almería participated in this program. Thanks to all for your participation!
What does the Alfacare Program consist of?
This program began in Spain in October 2018 with the mission of offering telephone support and training workshops for patients and families.
It is “a pioneering program to activate the patient from home”, which complements the usual clinical treatment care.
The patients who attended, are part of Alfacare, an activation program in health and emotional support for people with Chronic Obstructive Pulmonary Disease (COPD), caused by Alpha-1 Antitrypsin Deficiency (AATD), which is developed nationwide.
With that, it is intended “to diminish the adjustment disorders, in addition to the suffering associated with the disease and the probability of anxiety or depression; on the other hand, this initiative provides a space for patients to exchange their experiences ”.
What is AATD?
Alpha-1 antitrypsin deficiency (AATD) is an inherited genetic disorder that causes low blood levels of Alpha-1 Antitrypsin protein (AAT).
The lack of this protein, whose main function is to protect the lungs from inflammation, increases the chances of developing respiratory, skin and liver diseases.
Especially, the frequent appearance of Chronic Obstructive Pulmonary Disease (COPD) in adults.