This monograph provides a complete and up-to-date description of the AATD. It covers basic biology, genetics, laboratory diagnosis and the main organic manifestations; describes the clinical presentation of the AATD in adults and children; and features chapters on genetic counseling, patient opinions, and future therapies. The content has been designed to meet the needs of […]
ERS Alpha-1 Antitrypsin Deficiency Monograph Read More »
The San Cecilio University Hospital has hosted the workshop “Learning to live with the AATD”, developed by Doctor Francisco Casas Maldonado, also coordinator of the Aldaluz Alfa-1 Center. Professionals from the Pulmonology Service of this hospital, located in the Health Technology Park, have participated, together with professionals from psychology and physiotherapy, in this workshop, which
During the 52nd Congress of the Spanish Society of Pneumology and Thoracic Surgery (SEPAR), held in Santiago de Compostela (June 13 to 16, 2019), the 1st theoretical-practical course on alpha-1 antitrypsin deficiency ( AATD). This course, organized by SEPAR Training and the Spanish Registry of Patients with Alpha-1 Antitrypsin Deficiency (REDAAT), has been coordinated by
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Clinical session of the Pneumology Service of the HU San Cecilio de Granada: How to diagnose easily and early in Primary Care. AlphaKit® and Progenika-REDAAT Diagnostic Circuit. Granada, June 11, 2019. Day Hospital clinical session to update protocols for the administration of biological products (alpha-1 antitrypsin and gammaglobulins) and monoclonal ones in severe asthma to
Francisco Casas (Coordinator of the Andalusian Alpha-1 Center in Granada) and José Antonio Quintano (Spanish Society of Primary Care Physicians (SEMERGEN) have developed the Workshop for the diagnosis of alpha-1 antitrypsin deficiency (AATD), which has taken place during the IX SEMERGEN Respiratory Conference held in León on May 24 and 25, 2019. The workshop has
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The European alpha community celebrates, for the first time in its history, the European Alpha-1 Antitrypsin Deficit Day, European Alpha-1 Awareness Day, promoted by the international alliance of patients Alpha-1 Global with the support of the associations of the community countries. The commemoration is celebrated on April 25, and with it it is intended to
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ALFACARE is a health activation and emotional support program aimed at patients with COPD due to alpha-1 antitrypsin deficiency (AATD) undergoing treatment with intravenous alpha-1 antitrypsin (AATD). Alfacare Program 2019 It is a pioneering program in activating the patient from home It has been designed to complement usual clinical care and treatment. The objectives of
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An editorial has recently been published in the Archives of Bronchopneumology that analyzes the differences between the approved treatments for the treatment of pulmonary emphysema due to Alpha-1 deficiency. Esquinas C, Miravitlles M. Arch Bronconeumol. 2018;54:451-452. This publication reflects the differences between the approved treatments for pulmonary emphysema due to Alpha-1 atitrypsin deficiency in Spain,
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Alphas Camino de Santiago 2018 Healthy Eating Guide Read More »
The Alpha-1 Association of Spain, of patients and families affected by Alpha-1 Antitrypsin Deficit, organizes the Alfas en Camino 2018 program the last week of August 2018. They will cover a total of 115 kilometers on foot, from the town of Sarria, in the province of Lugo, to Santiago de Compostela. Our call is especially
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