New ways, same essence Since the state of health alarm was declared last March, AlfaCare has been transformed to be, more than ever, accompanying all Alfa-1 patients who are part of our program. Welcoming your concerns, doubts and uncertainty through phone calls and follow-ups we have been able to give support and help in
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The Spanish Society of Pneumology and Thoracic Surgery (SEPAR) answers questions from patients about COVID-19, in a series of short videos promoted by the Spanish Federation of Associations of allergic and Respiratory Diseases (FENAER), in collaboration with SEPAR Patients and the specialized channel Medicine TV. Within its objective of providing truthful information in relation to
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Early diagnosis and access to treatment, key demands of the European Alpha-1 Day. The Alfa-1 Spain Association joins the European Alpha-1 Day, which the patient associations commemorate on Saturday April 25. Early diagnosis; access to treatment regardless of the territory in which they reside, and the measurement of Alpha-1 levels in tests carried out on
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The GOLD (Global Initiative for Obstructive Chronic Lung Disease) initiative recognizes that people with Chronic Obstructive Pulmonary Disease (COPD) are among those most affected by COVID-19 and GOLD is working with the WHO (World Health Organization) to treat to minimize the impact of infection. GOLD strongly recommends that people with COPD follow the advice of
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The Global Alpha 1 Foundation has answered the most frequently asked questions in the scientific and social environment. Refers to the direct relationship between COVID-19 and the Alpha-1 deficit. Click to further information. Read more
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A work published last month in the Journal of Clinical Medicine shows the “profound ignorance of rare respiratory diseases among pediatric professionals and medical students” in Spain. The article, in which several of the country’s leading specialists in Alpha-1 Antitrypsin Deficit (DAAT) have a prominent role, calls for “including relevant material in the Medicine study
The European alpha community celebrates for the first time in its history the European Alpha-1 Antitrypsin Deficit Day (European Alpha-1 Awareness Day), promoted by the international alliance of patients Alpha-1 Global with the support of the associations of the community countries. The commemoration is celebrated on April 25, 2020.
April 25, 2020: European Alpha-1 Antitrypsin Deficit Day Read More »
ALAT-Neumosur Symposium: COPD due to Alpha-1 Antitrypsin Deficiency. 11th ALAT Congress. Mexico City, June 27-30, 2018. Regional Meetings to update knowledge about the DAAT in collaboration with the Alfa-1 Spain Association. HU Virgen del Rocío. Seville, May 12, 2018. Regional Meetings to update knowledge about the DAAT in collaboration with the Alfa-1 Spain Association. HU
The AlfaCare program, “Care and Resources to live with the Alpha-1 Antitrypsin Deficit (AATD)” has taken place at the Torrecárdenas Hospital in Almería. It is a comprehensive program of accompaniment and personalized support, created in collaboration with the Association of Alfa-1 Spain, which offers training, emotional support and support to patients affected by AATD through
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Our center has started to include patients in the EARCO (European Alpha-1 Research Collaboration). EARCO is a pan-European network committed to promoting clinical research and education in alpha-1 antitrypsin deficiency (AATD). The core project is the Pan-European AATD Registry, a collaboration that will provide real-world longitudinal data for AATD patients. EARCO has a global vision to
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